/Amber Olsen

About Amber Olsen

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So far Amber Olsen has created 2 blog entries.


By | January 29th, 2017|Categories: Uncategorized|

  One of the hardest parts of Willow's diagnosis was how to tell our girls. How did we tell them that their sister is dying?   Our middle daughter Jenna is 10 years old. She and Willow are 7 years apart, even more if you consider Willow’s developmental delay. Jenna is like a second mother for Willow. She [...]

Trip to Cambridge

By | December 7th, 2016|Categories: Uncategorized|

Once we returned from Jackson, we started research on the internet. I spent every evening looking through scientific papers I found by googling MSD. One of the papers I read was about 10 children in France. 8 of them had died before 10. We knew of 3 patients that where over the age of 10 from [...]